"After Kefalas learned her youngest child was dying, she moved from rage to hope as she realized that when the worst things happen, grief can be harnessed like a superpower to change the world and invest in miracles that transform lives in ways she never would have imagined"-- Provided by publisher
Leukodystrophy, a serious neurological disorder, impacts individuals of all ages, including both children and adults. It is characterized by the degeneration of white matter in the brain, leading to various debilitating symptoms and challenges throughout life. The book explores the complexities of this condition, offering insights into its effects on patients and families, as well as the emotional and medical support necessary for those affected.