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"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- Provided by publisher
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We The Scientists, Amy Dockser Marcus
- Language
- Released
- 2023
- product-detail.submit-box.info.binding
- (Hardcover)
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- Title
- We The Scientists
- Language
- English
- Authors
- Amy Dockser Marcus
- Publisher
- Penguin Putnam Inc
- Released
- 2023
- Format
- Hardcover
- ISBN10
- 0399576134
- ISBN13
- 9780399576133
- Series
- Rating
- 3.75 out of 5
- Description
- "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- Provided by publisher